I am a CYP with a common health problem

I am 6 years old and I have a tummy ache

What does the model of care mean for me?

My CYP health team looks after me in my local health centre so I don’t have to go to hospital. I have constipation, so my team make sure my family is supported to help me have a good diet and get enough exercise, and if I need medicines I get those too.

Why is it needed?

Children with common health complaints frequently end up needing hospital treatment, and often don’t get the health promotion and disease prevention care that they need.

What makes it happen?

A CYP health team working in community and primary care settings, decision support tools that are simple and accessible, begin with health promotion and disease prevention, support appropriate care, and help signpost referrals if needed. Real time support from specialists is available if needed

How will we know it's better?

Fewer CYP will use A&E and be admitted to hospital for primary care sensitive conditions

 

I am a CYP with a long-term condition

I am 10 years old and I have asthma

What does the model of care mean for me?

Now I see a nurse at a drop in group session regularly. I can talk with other children with asthma and see how they manage. I know how to use my inhalers and I know what to do if my asthma gets bad. My mum has also stopped smoking which is great!

Why is it needed?

Outcomes for children with asthma are much worse in the UK and particularly this bit of London. We know if we treat properly, and treat physical and mental health together, we can make a huge difference.

What makes it happen?

A team of doctors and nurses working across organisational boundaries, thinking about the whole child and making sure families know how to actively manage the condition whether in an emergency or day to day.

How will we know it's better?

Fewer CYP will use A&E and be admitted to hospital for primary care sensitive conditions.

 

I am a CYP with a complex condition

I am 9 years old and I have cerebral palsy and epilepsy.

What does the model of care mean for me?

When I have a problem with my feeding tube, instead of going to the GP and then ED and mum getting fed up, now I call the community nurses and they either sort it out or they make sure they find someone to do it.

Why is it needed?

Feedback from families shows that care is disjointed with lack of clarity around who does what when.

What makes it happen?

Linking primary care nurses, with community nurses in one holistic geographic team with shared information and closely communicating to GPs and the hospital.

How will we know it's better?

Fewer CYP will use A&E and be admitted to hospital for primary care sensitive conditions. Family satisfaction will increase.

 

I am a young person

I am 15 years old and I think I might be pregnant

What does the model of care mean for me?

My GP practice is welcoming and non-judgmental. I feel able to talk to my GP about my worries about unprotected sex and options around longer term contraception. I can also disclose other concerns about my general health and wellbeing and feel relieved and reassured after I've been to my GP.

Why is it needed?

I have in the past been misinformed about my rights to confidentiality/private appointment by receptionist because I’m under 16, and reluctant to open up to the GP in case he/she tells my parents. Have had to go to A&E for emergency contraception.

What makes it happen?

YPF (Young People Friendly) practices, well-informed staff, posters in GP surgeries, holistic risk assessment (THC), sexual health screen.

How will we know it's better?

Fewer YP will use A&E for emergency contraception, and potentially less teenage pregnancies. More YP going to their GP instead of A&E. Better signposting/referrals due to use of THC.

 

I am a Looked-After-Child

I am 14 years old and I've been placed here and it's far from home

What does the model of care mean for me?

I get care near where I'm staying and know who to call for advice and help. I feel supported by the doctor and the LAC nurse, and I know that when I leave care I will be supported by a Personal Advisor who I can talk to and ask for help around looking after myself.

Why is it needed?

LAC health and wellbeing is not as good as other YP because my parents are no longer involved in my care as they have mental health problems. Social services placed me far from home because I've been involved in a gang . I've changed schools and my friends are far away. I'm self harming 'cos I am unhappy and vulnerable and alone.

What makes it happen?

The LAC nurse will make sure I get help for from local CAMHS for my self harming. My personal advisor (PA) will listen to my needs, especially at weekends when I'm not at school and have no-one to talk to.

How will we know it's better?

Better outcomes for LAC, less risk taking behaviour, fewer CAFs for LACs, more consistent and empathetic PA support

 

I am a CYP with a long-term condition and anxiety or depression

I am 15 and I have epilepsy and I get bullied at school

What does the model of care mean for me?

I used to hate going to school because people picked on me for having fits and wetting myself. I got so worried about having a fit at school that I was making myself ill. Now I don’t worry so much because I have a great support worker who has helped me to manage my epilepsy better and deal with my worries.

Why is it needed?

We know that we have higher rates of admission for epilepsy locally and that we do not manage care according to best practice guidance.

What makes it happen?

Dedicated nurses who will link between hospital, GP and school, and focus on physical and mental health.

How will we know it's better?

Fewer CYP will use A&E and be admitted to hospital for primary care sensitive conditions

 

I am a CYP with a mental health or behavioural problem

I am 13 years old and I cut myself

What does the model of care mean for me?

I feel very sad very often. The only thing that used to help was cutting myself. I used to cut my arms with a razor and hide it with long sleeves. One day I went to the GP about a sore throat and he asked me how I felt. He was so kind and asked all the right questions and so I started to tell him how I felt. Now I see a super woman who is helping me to learn to deal with my sadness in a different way.

Why is it needed?

Young people do not access care easily all too often. There is often a challenge to identify mental health problems and find the right service to help.

What makes it happen?

Developing the teenage health check means clinicians have the skills to ask the right questions. Supporting management through better accessible electronic signposting.

How will we know it's better?

Fewer CYP will use A&E and be admitted to hospital for primary care sensitive conditions. Studies of well being will improve.

 

I am a healthcare provider

I am a busy GP seeing CYP in clinic

What does the model of care mean for me?

I know where to go for advice on EMIS. I know how to speak to someone at the hospital real time via email or phone. I have a regular paediatric visit where I can learn and ask questions. I feel supported to manage care better.

Why is it needed?

High levels of outpatients and ED visits for conditions that could have been managed by GPs with better support.

What makes it happen?

Closer working between GPs, practice nurses and hospitals through side by side clinics, hotlines, and electronic guidance.

How will we know it's better?

Fewer CYP will use A&E and be admitted to hospital for primary care sensitive conditions.

 

I am a Head Teacher

The workload on my teachers is increasing and they are not always able to support children with complex health issues

What does the model of care mean for me?

My teachers now have the knowledge and skills to identify young people with mental health challenges and are able to support them better by promoting resilience and helping them to achieve improved emotional wellbeing.

Why is it needed?

National policy endorses the need to support mental health in schools as there is a high and increasing number of pupils recognised as presenting with behavioural and emotional problems and that schools have an especially important part to play in building resilience in young people.

What makes it happen?

A focus on teacher/staff training to help address issues in the classroom.

How will we know it's better?

More school staff trained in developing emotional resilience of pupils and useful tools / resources made available for this work in schools
Increase in the number of children identified as needing support earlier and signposted appropriately.

 

I am a social worker

I have a heavy caseload which includes clients of all ages

What does the model of care mean for me?

I now have the knowledge and skills to effectively deal with the health challenges young people face and I feel better able to support them through their issues. The young people I deal with also have better access to better information on how to help themselves.

Why is it needed?

Shortcomings in the quality of interpersonal encounters with young people has been shown to have a negative effect on the effectiveness of and outcomes from various forms of physical and mental health therapies young people may be receiving.

What makes it happen?

Enhanced training. Better information for young people on our local authority websites.

How will we know it's better?

Young people will have a better experience of care, including transition and will benefit from improved self-esteem and well being.

 

I am a health service manager

I manage a busy General Practice seeing a significant number of children and young people

What does the model of care mean for me?

All staff feel more confident about dealing with young people and ensuring that they understand their rights and receive the appropriate and helpful advice. The numbers of complaints from young people and their parents that I have needed to deal with have reduced substantially.

Why is it needed?

In the past our reception staff have not been as helpful to young people as they could have been as they were not well informed about a range of issues affecting young patients. For instance, they did not understand that even patients under the age of 16 can be offered a confidential GP appointment and did not need to go to a hospital A&E just to maintain their privacy about their concerns such as being pregnant or needing emergency contraception.

What makes it happen?

Our staff have now have access to training and support to improve the information they give and their interactions with young people and their parents.

How will we know it's better?

Fewer patient complaints and improved staff morale.

 

I am a parent

I am a parent, what does it mean for me?

What does the model of care mean for me?

I know that if my child is sick I know where to go. I know that if my child needs extra support my GP can help me find it and even that help can come to us locally. I know that I wont have to miss so much work, taking my children to appointments and dealing with simple illness.

Why is it needed?

High levels of outpatients and ED visits for conditions that could have been managed by GP’s with better support.

What makes it happen?

GPs and paediatricans doing clinics together, hotlines and rapid referral clinics, electronic guidelines and primary care nursing support.

How will we know it’s better?

Fewer CYP will use A&E and be admitted to hospital for primary care sensitive conditions.

 

I am a care provider

I am a paediatrician

I see children who need to be seen, I know my local team of GPs, nurses, and AHPs. I can support those children who need me before they deteriorate using population level data.

I am a mental health professional

I work with children to support connections between teams dealing with physical health and mental health. I work with schools and GPs to try and intervene earlier

I am a CYP nurse

I work alongside GPs managing common conditions. When I need support the pediatrician is there. Families love the care being delivered at home and coordinated so well.